Ideas, advice and stories about technology, culture and accessibility

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Susanna Pathak

Susanna Pathak

Writer and designer

Pair of black IMAK Smart Gloves and pair of leopard print driving gloves side by side

Special Needs of a Tech-Intensive Mito Patient

Here I share what it takes to keep me up and functioning and down and resting, too. These lists and notes are drawn from the care and expertise I've received from so many individuals and teams, in health care settings and beyond, that have made such a difference

I strenuously avoid

1. Purchasing books from Amazon. An exception is my Audible subscription. 2. Facebook/Meta participation, personal and professional. My very famous “I don’t do Facebook” declaration [on my personal Facebook account] has stood lonely and coldly for more than a decade: “This is where I tell you that I

Artfully arranged objects including Protein drink, Levocarnitine Tablets, Rosary, pill container, Q Needs, Spectrum Needs

Susanna’s List of Actions for Coping With Physical Exhaustion

Patientology 101 It is good to have a list of activities to chose from when energy levels are low. Just looking at the Therapeutic Tableau photo (above) reminds me that there is room for artfulness in our daily habits and routines including taking care of ourselves and resting well. These

Good company

1. Friends 2. Neighbors 3. Podcasters 4. Teachers 5. Roman Catholics 6. Anglicans 7. League of Women Voters members and supporters 8. Favorite colleagues 9. Physical therapists 10. Musicians 11. People you meet when you're out and about 12. People who say remarkable things 13. People who watch