Ideas, advice and stories about technology, culture and accessibility

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Patientology

Pair of black IMAK Smart Gloves and pair of leopard print driving gloves side by side

Special Needs of a Tech-Intensive Mito Patient

Here I share what it takes to keep me up and functioning and down and resting, too. These lists and notes are drawn from the care and expertise I've received from so many individuals and teams, in health care settings and beyond, that have made such a difference

Artfully arranged objects including Protein drink, Levocarnitine Tablets, Rosary, pill container, Q Needs, Spectrum Needs

Susanna’s List of Actions for Coping With Physical Exhaustion

Patientology 101 It is good to have a list of activities to chose from when energy levels are low. Just looking at the Therapeutic Tableau photo (above) reminds me that there is room for artfulness in our daily habits and routines including taking care of ourselves and resting well. These